How a mother coped after death of teen son who had rare genetic disease
In a Greek restaurant in the central district of Hong Kong, Christina Strong stops in the middle of the conversation to reset her left arm, which was spread by my hand implanted directly on my thigh.
She bends in the more comfortable posture. “My heart sank for a moment, because I thought you had a stroke,” says Stirling, 51. “When you get a stroke, people can not move their arm.”
During our meeting, he strongly objected when he adjusted my arms and bowed to bow down again.
Strong has seen signs of such stroke many times in his life, but it was real and not imagined. His deceased son, Joshua Hillman, was on Christmas day in 2002, when he was 10 years old. A year later, it happened again in Switzerland.
The tests showed that they were MELAS (mitochondrial encephalopathy, lactic acidosis and stroke-like episodes), a rare genetic disease that is often fatal, and especially affects the brain, nervous system and muscles.
Early symptoms can include seizures, frequent headaches, vomiting, and muscle cramps. Another characteristic is the stroke-like rings that slowly and again cause brain injury.
The death of Strong’s son has passed over a decade, yet it does not take much time to wound up the memories of that crisis. Occasionally she is worried about a late night phone call from her daughter (He: Two: Athena, 21, and Kathrina, 19) in Los Angeles, is expecting a medical emergency.
“If she says,” I have a headache, then she says, “I do not have a headache”. He immediately mentions a stroke.
Traumatic stress disorder (PTSD) after her child’s examination.
During the five years of Joshua’s withdrawal, he was in constant crowd of adrenaline and was always alerted to the next medical emergency. “I was waiting for the next stroke, next bout,” she says. Joshua had to face stroke repeatedly: X was the last one.
One of his later episodes gave Joshua a great deal of change. His vision became weak, and in the ICU he could not identify anyone and kept repeating himself. When he returned to his home in the clean waters of Hong Kong, he tried to jump from the ceiling.
“Fortunately he was blind so he could not open the door of slippery because the interim in-charge stopped him,” says the strong.
I have been in contact with Professor Yasuchi Koga, a leading expert of genetic disease in Japan, Korom University, who told him that Joshua is struggling with PTSD. To help him cope, he went for a psychological consultation.
Joshua said to his mother, “I do not want to live much … live such a life.” In 2007, now bedridden, his immune system was so weak that he could not resist the flu. He died at the age of 15.
Regardless of the grief, the stronger felt relieved that his son was no longer suffering. Then came his turn.
Post-tromatal stress disorder is classified in DSM-5 – An official guide for mental health conditions used by health providers around the world – under the umbrella of anxiety disorders, because this condition is a serious concern.
Dr. Tess Brown explains: Specializing in trauma A clinical psychologist in Hong Kong.
Brown, who is also the founder and director of psychology services in the Talkspace, says that cases of general trauma such as sex or physical abuse, seasonal violence, domestic violence, child abuse and violent incidents like one-time car accidents occur.
The condition also raises physical damage. In the case of excessive stimulation, the lack of sleep is common. Bad dreams are other classic symptoms. Patients also have the risk of developing additional psychological conditions such as depression and addiction.
In Hong Kong, Brown believes that most people with PTSD are not treated due to stigma around mental health, which prevents them from seeking professional help. There is a lack of expertise in another trauma treatment. You often hear from customers who have asked for help from GP who are capable of treating psychological symptoms such as depression and anxiety, but not because of it: trauma
Treatment may include cognitive behavioral therapy focused on trauma or recurrence of eyes and the treatment of reproduction (EMDR). To avoid the outcome of both the approaches, there is a reflection in painful memory with vivid descriptions.
Brown explains that PTSD is a fuel that is not equipped with a memory. Memories are usually processed in an organized manner in the brain, but this can not happen when you are in a state of extreme fear or when the war system or flight is in a state of extreme inertia.
“Therapy helps to change memory from that trauma – an untreated, non-stop and disordered memory – in a natural memory,” she says. This gives the patient more control over that memory.